IPF10 Jul 2025 14:49
In Oct 2022 my dad had a ‘funny turn’.My mum had sent him out to the garage to get something and he was taking a long time. She checked on him and found him sat on the garden bench, looking grey, feeling awful. She got him back into the house, he went to bed and slept for about 14 hrs. Woke up feeling OK.Wouldn’t see a doctor. Couple of weeks later, it happened again. My mum phoned the doctor and they sent an ambulance. They ran tests in the hospital and he saw a doctor. The doctor said I think you may have pulmonary fibrosis. My dad’s response – “thank goodness, I thought it might be angina”. Then he came home and read about it.
They gave him steroids.Didn’t qualify for other treatments as his lung capacity was too high. He was really well all over Christmas. Could walk to the shop, declared that he was going to build up his fitness.
Early Jan, my mum messaged me to say he was feeling breathless. He didn’t qualify for the pf drugs because his lung capacity had dropped too much. End of Jan, he bought a mobility scooter because he couldn’t walk to the shop any more. Only used it once. Soon after, he had to go on oxygen as his levels were down to about 85%.
End of Feb, they had to buy a stairlift as it was taking him 40 mins to get up the stairs, even with the oxygen. Every time I went to see him, he had turned up the setting on the oxygen machine. He never got out of his chair while I was there.
One day in middle of March, he woke up confused and couldn’t operate the stairlift controls. My mum called the hospital. They made a bed available for him in his own room. They told us that he had 70-80% scarring on his lungs. We couldn’t quite believe what was happening.
In the hospital, they could deliver a higher flow of oxygen than the machine at home. He felt great. Sat in his chair chatting to anyone who would listen, telling them how lucky he had been to have had such a great life. We spent hours looking at all the photographs that had been collected over the years. We watched his oxygen levels drop each day. A couple of weeks later, he didn’t have the energy to get out of bed. A few days after that he decided that he’d had enough and asked them to put the syringe driver in. He asked if they could do anything to speed it up and they said no. He turned to my mum and said “see, I told you we should have gone to Switzerland”. Perhaps a weird sense of humour, but he retained it to the end.Never once complained about what was happening to him. 48 hrs or so later it was over. He was 73.
I’m sharing this with you because some readers may not know what an absolute bastard this disease is. Some posters on this board like to slag off the company and the board, hoping their posts will hurt the company or the share price in some way. Well, they can just f right off. I admire NFX for what they have achieved. NXP002 might offer hope to patients who currently have none. I’m keeping everythin
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