Totally Regulatory News (TLY)

19 Sep 2012 14:14

19 September 2012 AIM: TLY Totally Plc("Totally", "the Company" or "the Group") Totally announces the Go Live of the national NHS Patient Decision Aids

As part of the national NHS Right Care Shared Decision Making Programme, which is funded by the Department of Health QIPP Programme, Totally has developed the SANDY system, which is now live and operational.

The system is built on the NHS N3 secure server and comprises an interactive website that links to a database that can store patient data. The system also services the remote health coaching network, so that when the health coaches, who are fully qualified nurses, speak to patients, their notes can be stored in the secure database. This system also contains the functionality to be linked up to GP and secondary care databases, which means it can also act as a way to monitor long term conditions. An outline of the system was featured in the Department of Health's recently published Information Strategy.

The live system currently hosts five patient decision aids (PDAs), with a further 32 to be hosted by the end of the contract period. The current aids cover the following disease areas:

* Abdominal Aortic Aneurysm Repair (Medical Advisory Lead: Mr Jonathan Earnshaw) * Cataracts (Medical Advisory Lead: Mr Larry Benjamin) * Established Kidney Failure (overview: Medical Advisory Lead: Dr Donal O' Donoghue) * Established Kidney Failure (Kidney Dialysis: Medical Advisory Lead: Dr Donal O' Donoghue) * Established Kidney Failure (Transplant: Medical Advisory Lead: Dr Donal O'Donoghue)

Totally has devised and designed these Patient Decision Aids by assembling distinguished medical advisory groups in each disease area that include national clinical leaders and representatives from the third sector and patient groups. Dr Donal O'Donoghue, the National Clinical Director for Kidney Services, has acted as Totally's Clinical Advisor across the project. Dr Hilary Bekker, an expert in Decision Sciences at Leeds University, has also acted as an advisor for Totally across the Patient Decision Aid project, ensuring the Patient Decision Aid content as well as design and presentation of the site is non-biasing and adheres to Shared Decision Making principles.

The Totally team have worked closely with BMJ Evidence, part of the BMJ Group, who have developed the evidenced-based editorial content of the Patient Decision Aids.

A further two Decision Aids, Osteoarthritis of the Hip and Osteoarthritis of the Knee, are due to go live by the end of September.

Commenting on the launch of the system, Dr Donal O'Donoghue said, "Health and healthcare is about people and choices. Patient Decision Aids encourage people to bring their values, aspirations and preferences to the choices they face. It has been a pleasure to lead this development which is profoundly altering how we manage patient interactions."

Clare Thompson, Chief Executive Officer of Totally said, "It has been an honour for Totally to work with so many distinguished clinical leads and so many motivated people to design a whole system that enables Shared Decision Making to permeate throughout the NHS."

Dr Steven Laitner, a practicing GP and Clinical Lead for the national Shared Decision Making Programme, added: "All too often there is a paternalistic approach to healthcare, with well-meaning clinicians deciding what is best for their patients. Evidence suggests that patients don't always know that they have a choice, but when they are involved in decisions about their treatment, their experience, satisfaction and outcomes improve. So we are enormously proud to be launching these new and vital tools for patients, enabling them to share the decision making process with their clinicians. These Patient Decision Aids help translate the NHS commitment of `no decision about me, without me' and the NHS Mandate into reality".

The website and associated Patient Decisions Aids, with access to health coaching support, are now available to use at: http://sdm.rightcare.nhs.uk/

About the Shared Decision making programme

The national NHS Right Care Shared Decision Making Programme is funded by the Department of Health's QIPP Programme.

QIPP - Quality, Innovation, Productivity and Prevention - is a large scale transformational programme for the NHS, involving all NHS staff, clinicians, patients and the voluntary sector. The Right Care programme is focussed on increasing quality and value for patients and for commissioners.

The Programme's role includes planning and overseeing the delivery of a national programme of work which will promote the spread and embedding of Shared Decision Making within the NHS.

Totally Health, a subsidiary of AIM listed Totally Plc, was appointed by NHS Midlands and East strategic health authority cluster (which hosts the Programme) as a preferred bidder to provide services for Lot 1 of Phase 4 of the Shared Decision Making Programme.

Totally are working with the following national clinical directors:

* Dr Chris Clough - Neurosciences Advisor * Professor Erica Denton - Imaging * Professor Huon Gray - Cardiovascular Disease * Dr Hugh Griffiths - Mental Health * Dr Annie Mackie - Screening * Dr Donal O'Donoghue - Kidney Services * Dr Sheila Shribman - Young People and Maternity Services * Dr Robert Winter - Respiratory Disease

The full lists of conditions covered are:

* Abdominal Aortic Aneurysm Screening * AAA Repair * Acne * Antenatal screening * Atrial Fibrillation, Stroke Prevention * Blood Pressure * Cataracts * Carpal Tunnel Syndrome * Cholecystitis * Cholesterol * Chronic Obstructive Pulmonary Disease * Depression * End of Life Care * Established Kidney Failure * Established Renal Failure (Dialysis) * Established Renal Failure (Transplant) * Inguinal and Umbilical hernia (Surgical Hernia repair) * Localised Bladder Cancer * Localised Bowel Cancer * Localised Breast Cancer * Localised Prostate Cancer * Localised Lung Cancer * Lower Urinary Tract Systems / BPH * Mennorghia / Heavy Menstrual Bleeding * Multiple Sclerosis * Obesity * Osteoarthritis of the knee * Osteoarthritis of the hip * Pregnancy after previous C-section * Prostate Cancer Testing * Recurrent Tonsillitis * Rheumatoid Arthritis * Sciatica * Serous Otitis Media * Smoking Cessation * Stable Angina * Type 2 non insulin dependent diabetes mellitus

Further enquiries:

Totally PLC www.totallyplc.com

Clare Thompson, CEO 020 7284 5587 Merchant Securities Limited

Lindsay Mair / Simon Clements 020 7628 2200

About Totally Health

Clare Thompson is the CEO of Totally Plc and Totally Health and has over 20 years' experience in leading health technology projects and empowering patients. Most recently she was the Managing Director of Bupa Health Dialog and prior to that Clare was part of a team that successfully bid and pitched for NHS Choices programme. She oversaw a successful transition from the bid to implementation and became the Director of Innovation, Strategy and Engagement for the site following the transition process.

Wendy Lawrence is Managing Director of Totally Health and previously worked for Bupa Health Dialog, leading the Client Delivery Team on a range of projects, from complex FESC deliveries through to individual PCT specific contracts across the UK. Wendy's NHS career spanned some 23 years during which time she was Chief Executive of three large Primary Care Trusts in Derbyshire, including Amber Valley which was one of the highest performing organisations nationally. Wendy also held senior Board level posts in Health Authorities, Secondary Care Acute Trusts, Community Trusts and extensive work with the Ambulance Service where she began her career as an Ambulance Woman.

Wendy Norton, Head of Health Coaching, has operational and developmental responsibility for Totally's team of remote Health Coaches. Wendy is a registered Nurse with over 25 years of experience in both public and private practice areas. Working primarily in Intensive Care and Surgical Directorates. Wendy has led several programmes delivering Shared Decision Making or Long Term Condition Management through Health Coaching, working with both private and NHS patients. Recent roles include; Senior Manager, Provider Management, Bupa Healthcare Partnerships. Clinical Service Manager, Bupa Healthcare Commissioning, Lead Service Manager, Bupa Health Dialog.

1