Patient 127 Nov 2022 06:41
The best practice IMHO is not to name known trial participants without them knowingly having their trial experience shared i.e if they appear on TV etc and not to direct quote anything they may share via a forum for disease sufferers and certainly absolutely never ever engage with patients on such forums unless you yourself have a legitimate reason to be on it and being a scancell investor is not one! ...Otherwise, that is sick morally bankrupt, and misses the whole concept of this is a trial and very early days one at that, such behavior makes you some kind of stalker...of course, sharing that there is publicly viewable information out there relating to the trial participants is not a crime but this trial is such that we will get to know the effectiveness or otherwise of modi 1 soon enough anyways no need to risk putting very ill people under any afdded stess